Because good research needs good data

The Patients Participate! Workshop

Bridging the Gap between Information Access and Understanding in Health Research

17 June 2011 |

We now have more access than ever to scientific papers and summaries of biomedical and health research. Anyone with a computer and an internet connection can read the latest research results due to initiatives like UK PubMed Central which provides free access to scientific peer-reviewed papers.

Having access to the information does not always help patients or the public make sense of scientific research. This workshop will examine ways that we might address the gap, through the development of ‘community content’ and the application of web technologies that might help people to make sense of the science.

The workshop will bring together medical research charities, patients, researchers and information and technology specialists to discuss issues around providing biomedical and health research information more accessible to patients through the production of lay summaries and investigating the feasibility of a citizen-science approach.

For more information about this workshop please see the agenda for the day. 

 

Costs and Registration

If you would like to register please email Karen Walshe (karen.walshe@bl.uk).