Because good research needs good data

Clinical Medicine

Use Cases

International dystrophic eb Patient Registry
The international registry of dystrophic epidermolysis bullosa (DEB) patients and associated COL7A1 mutations.

Metadata standards

Protocol Data Element Definitions

Used by the the National Institutes of Health (U.S.) for the the ClinicalTrials.gov website. The Protocol Registration System (PRS) is used to register clinical studies with human subjects.